Social work support and unmet social needs in life after stroke: a cross-sectional exploratory study

Abstract Background Stroke patients are often affected by long-term disabilities with needs concerning social issues. There is relatively little consideration of social recovery of patients and the support required to return to work, receive social benefits, participate in daily life activities, maintain contact with family and friends and to organize financial affairs. In our study we aimed to investigate if existing tools record social needs adequately. We analyzed the current provision of social support provided in long-term care after stroke and whether unmet social needs were associated with quality of life, caregiver burden, overall function and degree of disability. Methods Our analysis is part of the Managing Aftercare of Stroke study (MAS-I), a cross-sectional exploratory study of patient needs 2â 3â years after initial stroke. Assessment tools included the Nikolaus-score (social situation), the EuroQoL (quality of life), the German Burden Scale for Family Caregivers (caregiver burden), the modified Rankin Scale (disability / dependence), Stroke Impact Scale (function and degree of disability) and the Stroke Survivor Needs Questionnaire (unmet needs). Results Overall 57 patients were included in MAS-I, with ten patients classified in urgent need of socio-economic support according to the Nikolaus-score. Patients with lower than normal Nikolaus-score had a higher degree of disability. Thirty percent of all patients had never received professional social support. Social worker contact happened mostly during the stay in acute hospital or rehabilitation institution. Only four patients (11%) reported long-term support after discharge. Apart from social worker contact during acute care, 43% of patients had unmet needs in the long-term aftercare. Forty percent of all patients included in MAS-I were recommended for social work intervention after an in-depth analysis of their situation. Finally, we saw that unmet social needs were associated with lower quality of life and higher caregiver burden. Conclusions Our data suggest significant unmet needs in social care in long-term stroke patients. Screening tools for unmet social needs such as the Nikolaus-score do not holistically report patientsâ needs. Trial registration Clinicaltrials.Gov NCT02320994 . Registered 19 December 2014 (retrospectively registered).

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PID https://www.doi.org/10.1186/s12883-019-1451-y
PID https://www.doi.org/10.17169/refubium-25336
PID https://www.doi.org/10.6084/m9.figshare.c.4657949
PID https://www.doi.org/10.6084/m9.figshare.c.4657949.v1
URL https://refubium.fu-berlin.de/handle/fub188/25566
URL http://dx.doi.org/10.6084/m9.figshare.c.4657949.v1
URL http://dx.doi.org/10.6084/m9.figshare.c.4657949
URL http://dx.doi.org/10.17169/refubium-25336
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Author Lehnerer, Sophie
Author Hotter, Benjamin
Author Padberg, Inken
Author Knispel, Petra
Author Dike Remstedt
Author Liebenau, Andrea
Author Grittner, Ulrike
Author Wellwood, Ian
Author Meisel, Andreas
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Collected From Datacite; Refubium - Repositorium der Freien Universität Berlin
Hosted By figshare; Refubium - Repositorium der Freien Universität Berlin
Publication Date 2019-01-01
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Country Germany
Format application/pdf
Language English
Resource Type Collection; UNKNOWN
keyword FOS: Health sciences
keyword :610 Medizin und Gesundheit::610 Medizin und Gesundheit 600 Technik, Medizin, angewandte Wissenschaften
keyword FOS: Sociology
keyword FOS: Biological sciences
keyword FOS: Earth and related environmental sciences
system:type other
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Source https://science-innovation-policy.openaire.eu/search/other?orpId=dedup_wf_001::f9e552b693de5cfa7e0682f3e9dfcf28
Author jsonws_user
Last Updated 19 December 2020, 19:43 (CET)
Created 19 December 2020, 19:43 (CET)