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Researchers’ views on, and experiences with, the requirement to obtain inform...
Abstract Background Informed consent is often cited as the “cornerstone” of research ethics. Its intent is that participants enter research voluntarily, with an understanding of... -
What is it about a cancer diagnosis that would worry people? A population-bas...
Abstract Background Surveys indicate quite high prevalence of cancer worry in the general population, but little is known about what it is about cancer that worries people. A... -
Model consent clauses for rare disease research
Abstract Background Rare Disease research has seen tremendous advancements over the last decades, with the development of new technologies, various global collaborative efforts...
